Elizabeth Joniak-Grant

Elizabeth Joniak-Grant is a sociologist and has served as patient representative with the FDA since 2014. Her disease experiences include chronic daily migraine, fibromyalgia, arthritis, myofascial pain syndrome, occipital neuralgia, chronic pain, and Von Willebrand disease. She is a member of the American Sociological Association’s Disabilities and Society and Medical Sociology sections, Migraine Research Foundation, Coalition for Headache and Migraine Patients, National Fibromyalgia and Chronic Pain Association, National Fibromyalgia Partnership, and the American Chronic Pain Association. She has written for Fibromyalgia & Chronic Pain Life Magazine, served on multiple FDA Advisory Committees, was a review panel member for the Office of Orphan Product’s Rare Disease Natural History Grants Program, and taught Understanding Basic Biostatistics at the 2016 and 2017 patient representative workshop. Her research interests include medical sociology, institutions, interaction, deviance, homelessness, social control, troubles, and the self. Dr. Joniak-Grant has received numerous awards and fellowships and has presented her research at several national conferences. She is currently writing a book about the 3 years she spent researching the lives of young adults living on the streets.